Ten minutes after my husband arrived in his hospital room, the space with doctors, nurses, therapists and technicians beat. Warnings beep on machines. White jackets crawl and whisper. And then Joel was brought back the door, Brancard Wielen rotated, propelled by a fleet scrubs in sprint mode.
We had just returned from the Olympic Games in Rio de Janeiro. Our next trip would be from Wisconsin to Portland, Oregon, to welcome our first grandchild. But first Joel chose to get a hip replacement. He counted on improving his quality of life.
Instead, a nick of the retractor caused a life -threatening bleeding that caused a casastrophes cascade. Within a few hours he went from a healthy, active, 63-year-old to an unconscious, livelihood IC patient. Kidney failure followed, plus a hindered colon and compartment syndrome – all the complications of what a routine procedure should have been.
To make matters worse, the doctor who ruined his hip replacement was responsible for repairing the error.
I had trusted too much – the doctors, the hospital, the statistics that proclaim common and safe hip replacement.
Why didn’t I ask more questions? I thought I turned myself off. Why didn’t I have trained myself about the risks? Why didn’t I ask to do the procedure in a larger, regional facility?
Prepared for a hospital stay of one to three -day, with a return to normal in six weeks, Joel started a month -long hospitalization without guaranteed survival. And because he was drugged in incoherence, I made decisions for him. Without medical knowledge and little experience in trauma, operations or hospitals, I again trusted too much.
The staff invited me to daily briefings, but their terminology confused me and I missed information because they spoke so quickly. I wanted to go back in time. I hoped it was all a dream. Yet I tried to remember their words and repeat every message to our daughters.
The small framework of the ICU nurses community Hospital checked Joel the clock, checked his breathing tube, supervised dialysis and planning multiple operations per week. Nurses gave me permission forms with little explanation and assured me that every operation was essential to remove dead tissue from Joel’s leg. I drew the shapes until 90% of his muscle had disappeared from lower leg.
Thanks to Nancy Jorgensen
I had so many questions: Why was the doctor who now had the hip replacement in the boat who was in charge of the recovery of Joel? Why did the main surgeon ignore the recommendation of the colon specialist to have Joel evaluated elsewhere? Why was there a rotating staff instead of one director who was responsible for intensive care? And why argue two of Joel’s doctors at the Central ICU agency?
That was when a rabbi came to see me.
“You know what they are fighting about, right?” she said.
She never asked if we were Jewish (we are not) or if I needed spiritual guidance.
Just a few minutes earlier, a nurse had told me that a doctor argued for amputating Joel’s leg; The other did not agree. The argument continued.
Why only two doctors instead of a larger team? I wondered. Why didn’t they ask for my opinion? Who would make the ultimate decision?
“You can request another hospital,” she told me calmly, as if she had read my thoughts. “You could convey your husband.”
Those six words seemed so clear.
Twenty minutes to the east was a prominent medical facility that was connected to a medical college and staffed with hundreds of doctors, research teams and ultramodern equipment. But in the Fuzz of Shock and Stress I had not considered this alternative.
“Maybe discuss it with your daughters,” said the Rabbi.
For the first time in two weeks I felt someone by my side. She had assessed the situation and suggested that I would leave the place that hired her. She suggested that there was a better place than the one she represented. But more than that, she gave my desk. She assumed that I had power even when I felt powerless. She assumed that I was bright, even when I felt impotent.
Her suggestion seemed impossible. Doctors, no women, names decisions.
Would anyone listen to me? I wondered. How would I move a seriously ill man who needed monitoring from minute to minute?
Yet I knew that if I didn’t act quickly, my husband’s leg could be gone. He could even lose his life.

Thanks to Nancy Jorgensen
I went home and called that regional hospital. I discovered a team of Ledemaatingspenspecialists who saved legs instead of amputating them, and I found a doctor to supervise my husband’s case.
The next day at 7 o’clock, intimidated and anxious, I approached the authority figures I had learned to trust the medical professionals who towered from their self-constructed pedestal. I told them that I had initiated a transfer and my husband would leave their facility.
The whole day I passed delays, waiting for a bed, waiting for approval, waiting for coordination – waiting, waiting, waiting.
At 10 p.m. Joel was transferred to an ambulance to the larger hospital, where he would spend the next 2 1/2 months.
He still required operations, food tubes and dialysis. But now he had a team of doctors who focus on saving both limbs and life, with resources that go beyond those in the local hospital. And he had a woman with a voice.
Would I have found my voice without that rabbi? I am not convinced that I would have done that. But once I changed, I intended to do this again.
Not all my requests were taken into account. But sometimes, when I pointed to a symptom or insisted on a test, my research led to a new treatment. My husband also experienced medical mistakes in this new hospital, but he survived. And apart from the leg brace he is wearing now, the blue disabled board on our car and the scar of his temporary colostomy, he is whole.
Compared to the dying man who unconsciously and immobulated, Joel has changed. I have changed too. Shortly after Joel came home, I consulted a law firm about a misconduct. After almost a year of meetings and investigations, they advised us to leave the case. Wisconsin had a limit for compensation and the burden was too great to prove negligence.
Despite that disappointment, I still speak. Now, for every doctor appointment, I prepared a list of questions, complaints and possible treatments. When a doctor Pooh-Pooh a test, I challenge their opinion. When a nurse minimizes a symptom, I repeat my concern. If a result goes unnoticed, I draw attention to it. And my advocacy goes beyond medicine. When I appeared in court about a Probate issue, I wrote a script for my lawyer with points to make the judge.

Thanks to Kenny Withrow
Although drugs, operations, therapies and hard work have saved and rehabilitated my husband, it was a complete stranger who settled his move to the right facility – and saved his life very well. Although life often seems impersonal, with virtual meetings instead of face-to-face interactions, texts instead of telephone conversations and blood tests instead of the way of the bed, she made sure that I felt connected and cared for.
At a time when the universe had robbed me – from the health and company of my husband, of safety, satisfaction and peace of mind – she offered me a gift. She didn’t expect anything back, stood by my side and kept me up. She gave me confidence and hope. Her compassion healed and transformed as much as every test or treatment and let me look for ways to pay her kindness in advance.
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Nancy Jorgensen is a writer, educator and collaborative pianist established in Wisconsin. Her most recent book is a middle sports biography, “Gwen Jorgensen: the first Olympic gold medal triathlete” of the US “(Meyer & Meyer). Her essays have appeared in Mrs. Magazine, the Offing, River Teeth, Public Radio in Wismonsin, Cheap Pop And elsewhere.
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